Gastroparesis is a debilitating illness with no cure. We have created Gastroparesis Australia to share our stories and give suffers a voice. Join our awareness campaign and change the way we think about gastroparesis.
Our mission is simple.
Support the patients. Promote awareness. Fund research.
…and make smoothies. (we can all make amazing smoothie).
Gastroparesis Australia was founded by Anneliese Defreitas Alarcon. She created GP Aus after suffering from gastroparesis, then needing a nasojejunal tube, repeat surgeries, and the experience of constant nausea, pain, and vomiting. (“All of it.”)
There was little information on gastroparesis and few health professionals really understood the disease. Anneliese thought this all needed to change. Less stressful. Fun, even. Why can’t patients band together to support each other and directly campaign awareness? Someone’s gotta do it anyway. She started this foundation with patients to support patients. And Gastroparesis Australia was born.
The Facebook support groups Gastroparesis Australia and Inside Story offered patients and carers a safe environment to network and share information. This website was built to be THE information hub for gastroparesis patients around Australia.
We partnered with Dr Vincent Ho and his team at Western Sydney University and Campbelltown Hospital (NSW) to support research that was shaped by patient concerns.
To date we have:
- Our support groups have 1,000+ active GP warriors around Aus and beyond!
- Created information packs that are handed out at hospitals and clinics
- Partnered with Devonport Rotary Club to fund not one BUT TWO PhD scholarships for gastroparesis research
- Engaged with WSU researchers to be involved in their clinical trials and survey
- Presented at the 2018 Australian Symposium for Gastroparesis to over 150 clinical professionals
Anneliese Defreitas Alarcon was diagnosed with gastroparesis in 2009 after years of chronic nausea and pain, previously dismissed as a viral illness or food poisoning. Frequently in and out of hospital, home often felt like more of a holiday than her regular residence. She manages her gastroparesis with an NJ (nasojejunal) tube and a surgically implanted ‘gastric pacemaker’. But continues to battle the physical and mental symptoms.
Anneliese lived in Illawarra, New South Wales, Australia with her two young daughters. She created Gastroparesis Australia to tell the world about her disease and connect with other patients. And now her group has grown far beyond that! And you too can join the community.
Sadly Anneliese passed away in August of 2018. But her passion to find a cure for gastroparesis lives on in the GP Aus community. She was there for all her members, motivating them to continue their fights against the disease. Anneliese leaves behind her legacy, Gastroparesis Australia, and her inspiration to continue the fight against gastroparesis.
Help us finish the fight against gastroparesis once and for all. A special memorial fund has been setup in accordance with Anneliese’s wishes, with all proceeds going towards gastroparesis research.
It’s time to get serious and kick gastroparesis’s ass!
how has COVID-19 impacted your gut
28 May 2020
We are recruiting participants who are at least 18 years of age, diagnosed with a gastrointestinal condition, and fluent in English to participate in this study. The purpose of this international collaborative study is to better understand the impact of the COVID-19 pandemic for those living with a gastrointestinal condition. Participation in this study will involve completing an online questionnaire on three occasions (now, and then in 6 and 12 months time) that will take approximately 40 minutes to complete.
To participate, please click on the link: www.gicovid19study.com
For more information, please contact the research team: Dr Simon Knowles, Swinburne University of Technology (Melbourne, Australia), ph: +613 9214 8206, email: firstname.lastname@example.org The study has attained ethics approval from Swinburne University of Technology, Melbourne, Australia.
WSU Giving day
17 October 2019
Slow and Steady fundraiser
31 August 2019
Hi I’m Sharna, I created Slow and Steady to promote creative activities within the Gastroparesis communities in order to reduce psycho-social stressors.
The Slow and Steady project has released a range of products supporting this campaign in order to raise funds for Gastroparesis Australia and research. All profits that are made from the designed range will be donated directly to the GI Motility Research Fund at Western Sydney University.
The products feature the Slow and Steady logo, which is minimalistic and versatile, making it suitable for anyone to wear. The logo’s design was inspired by the scans of a Gastric Emptying Study which is a tool used to diagnose Gastroparesis, (as I am sure we are all far too familiar with).
If you would like to support this cause you can do so by purchasing one of these products by emailing me email@example.com
We need your creativity
12 March 2019
Hi fellow GPers we need some of your creative juices! I’m Sharna Webb a UNSW Design student creating an artwork to showcase the collaborative spirit of gastroparesis warriors. I am aiming to assemble a large woven wall tapestry from small pieces created by YOU, such as clay beads, braided fabric, or crochet piece. Once its done pop it in the mail and Sharna will add it to her piece. No experience needed, just bring your creativity and express yourself in your work! The final artwork will be exhibited at the end of the year at UNSW art gallery.
So become part of modern art history and help raise awareness for gastroparesis in the art world. Contact me (Sharna) for more info at firstname.lastname@example.org
Update 31 August 2019 |
I just wanted to give everyone a quick update on the project that I have been working on. I wanted to thank everyone who participated in this work and have supported both the community and the project! I received great feedback from both the participants and from the markers. So, THANK YOU! without you this work would not have been possible. The final work will be exhibited at the end of the year, and I will post an update closer to the date to show everyone’s wonderful work being exhibited!
Join Australia’s largest gastroparesis survey
15 February 2019
Researchers from the School of Medicine at the University of Western Sydney are interested to hear from individuals with gastroparesis around Australia. The questionnaire will help us better understand gastroparesis and the risk-factors. They are looking for female and male participants aged 18 year or over. Your participation involves reading the information and completing the survey
Your answers to this survey will help predict risk-factors for gastroparesis and inform health professionals to better diagnosis individuals in the future. Your participation is voluntary and anonymous. The survey is expected to take approximately 5-10 minutes of your time.
Support Gastroparesis Australia in the New Year
21 December 2019
Hi everyone I’m Simone Downie, as a fellow GPer I have decided to embark on a Gastroparesis fundraiser after feeling annoyed that our condition doesn’t get the recognition and fundraising it deserves compared to other illnesses. I was spurred on my by husband and two beautiful daughters who have been an amazing support to me on this journey of Gastroparesis. I wanted to bring awareness to the community as to what Gastroparesis even means and also bring to light that although in some cases it is an “Invisible Illness” it still impacts greatly on those that have the condition and their families.
To date I have raised just over $8,000 which has been contributed to WSU GI Motility Research Team. I am really pleased with the result and have been spurred on to do more fundraising in the future and encourage anyone who is well enough to take up the challenge as well.If you would like to buy a beautiful calendar in support of a cure for Gastroparesis you can email Simone at email@example.com
It may sound cliched but it’s true, we couldn’t have done all this without your support and donations!
Join the amazing list of generous donors who have supported our great cause….shout out to Rotary Club of Devonport, Rossetto Tiles, ITSM, Cranes Combined Tasmania, Federal Group Helping Hand Fund, Coffee Tribe Cafe, the Tasmanian State Government, and a special thanks to Dennis Turner!
We will love you whether you donate 5 dollars or 5 million dollars, it’s the thought that counts.
Host an event! Get your creativity on and get the gang together for fundraiser dinner gala, golf tournament, karaoke competition, the sky’s the limit! Contact us if you want help with ideas or want a start pack with more information.
Make a donation at Western Sydney University donations portal. Select ‘GI Motility Research’ from the ‘I would like to support’ options. Donations are 100% tax deductible and a receipt will be provided.
Go and check out what your donations are funding at the Translational Gastroenterology Laboratory at the School of Medicine, WSU.